This week Ellie has had so many amazing adventures. I spent most of my days between driving to visit with my Grandma in Indiana and taking Ellie to appointments. I wish I could of spent more time with my grandma but my time is really limited with all the appointments and home schooling for Ellie. But even though we could only stay for a few hours each time it was a great couple of hours. My grandma is pretty amazing. Ellie saw the Neurologists this week along with did her speech evaluation. I was very nervous because Ellie has been having really terrible neck pain and also headaches. But he put my mind at ease by explaining that Ellie is very sore from laying in the same position during surgery and that she will need to do some therapy on her neck. We are lucky enough to have an amazing Medical Massage therapist that came over to work on Ellie’s neck tonight which gave her some relief from the pain. We are also now doing more taping to work the muscles in Ellie’s face to help bring back the motion and feeling. Ellie also was able to take a Math test this week and get really close to catching up in at least one subject. I am looking forward to her getting back to school but it is so hard with so many doctor appointments. This upcoming week is going to be a jammed packed week of doctor appointments but I am hoping in the next few weeks Ellie can slowly make it back to school. Her energy level is really low at the moment and she struggles to stay awake as her body is still recovering from surgery and all the therapies take allot out of her.
Now we are moving on to more exciting things. The past few days have been filled with so many exciting adventures and news.
Ellie was able to go to the Blackhawks game on Valentines day with Dave thanks to the Lane Family who donated their season tickets to us. They then ran into some of our family at the game and where able to sit front row to the ice during the half of the game because the people next to them didn’t show up. Ellie was so excited to tell me all about the Hockey game. She said how much she loved dancing whenever they scored and how they won. Thank you Sarah and Bryan for hanging with Ellie and Dave they had a blast with you guys. She also got to take a tour of the locker room. She didn’t run into any players but she was super excited that the locker room was clean and not smelly lol.
We also have been overwhelmed by the amazing support from the community with all the green ribbons that where started by the Lemont High School Baseball and Football teams. How amazing it has started a trend of ribbons all around Lemont. My heart feels so full when I see the Green lights, the Green Ribbons, and #EllieStrong bracelets everywhere. It is by far the coolest feeling when I open my facebook and see green everywhere. It gives me chills knowing the love that is pouring out for my girl. We also got some exciting news this week that due to overwhelming show of support, phone calls to the city of Lemont, Ellie will be the St. Patrick’s Day Princess for the Parade here in town. As the village said she has stolen the hearts of the community. I know she has stolen my heart. We also got amazing news tonight that we are all set for house seats to see Hamilton in March. I can’t thank the people that made this happen enough. So many exciting things that have happened and are coming up in the upcoming weeks. I wont be updating this page for the weekend as we are going to spend some quality family time together.
My heart is full with love and generosity that has been shown to our family through this tough time. Thank You.. Thank You.. Thank You..
A mother with a battle ahead of her.