I had a rough day today. I did allot of crying and soul searching today. Ellie really wanted to go to church so we all went as a family to church. I was ok until we went up for communion and our Paster went to bless Ellie. At this point I had a complete melt down infront of the whole congregation. I pray every day that Ellie will pull through this but today was slightly different. I felt closer to god than ever today.
Dave and I are not extremely religious people we tend to spend more time on Sunday mornings in bed then at church. But somehow this whole thing has brought me closer to god than ever. I have a feeling that we are going to be spending more time at Church than in bed from now on. Depending on how Ellie feels of course. But if nothing else we will be spending Sunday mornings with god from home, hospital, or church.
My family has prepared a letter to the community. Make sure you click on Thank You on the left of the main webpage to view it.
I know that simple thanks just doesn’t seem like enough, but for the time being that’s all I can do. I also would love to send thank you cards to each individual family or person but at this time, I cannot I am just too busy taking care of Ellie’s & Jakes needs.
Now on to an Ellie Update: Ellie lost her first tooth yesterday while I was doing her mouth therapy. This was very exciting; we have been waiting a few months for this tooth to come out. Every time they would take her into surgery I asked “while you have her out can you take the tooth” they would just say we will see if we need too. So Ellie was so excited when the tooth fairy came last night. We spent the day yesterday making a tooth fairy box that Aunt Myrlee gave us for Xmas.
She also had a little play date today with some of her friends from school. When we got to the house Ellie was hiding behind my coat. She was also crying that she didn’t want to go before. I finally just left hoping she would do better without me. And she did, she was so happy when she came home. She said that was so much fun. Haven’t heard those words from her in a long time..
Then my Dad wanted to do something special with Ellie before she got too sick. So he took her to the Toy Story on Ice. Wow did she have a goodtime. Lots of smiles from her today unfortunately I didn’t feel the same. I guess we have our good days and bad days. Today was a Great Day for Ellie and a very difficult day for me. I just need her to survive this. I know she is a strong girl and there is a chance that she will come out of this with flying colors but I just can’t get it out of my head today that there is a chance she won’t.
I must tell you that my friends, family, and the community gave me a great gift on Friday. The gift of hope and friendship. What amazing people we have in our lives to help us fight this awful disease. Thank you again for coming out and supporting Love for Ellie. I will keep this website going through Ellie’s entire journey. I will also be posting any new fundraising events for the Ellie Fund. So please check back. As I told many of you on Friday, this is my therapy and when I see how many hits I have a day it makes me smile and feel so warm hearted that so many people are pulling for my little Ellie.
Tomorrow is the big day. Ellie goes back to school for 2 hours a day. I’m not sure who is more nervous me or her. We are going to start by having her go for the Valentine’s Day Party tomorrow. Wish us luck. I will let you all know how it goes tomorrow.
P.S. I know many of you are asking how much was made on Friday night. I am still waiting on the totals as soon as we get all our ducks in a row I will let everyone know. Thank you again we need all the help we can get.
A mother with a battle ahead of her.