Ellie has been doing better but still tired since we have been home from the hospital. We have had a week full of love and support from everyone. We feel like we have been wrapped in everyone’s arms and the support has been amazing. I am apologizing in advance if I forgot anything but my memory has been a little off the past week. But Jake had an amazing day on Friday. His school Old Quarry Middle School along with St. Cyril a private school got together and raised money to make a special day for him with surprises for him. He came home and told me it was a great day. I can’t thank everyone that made my boys day so special. He was on top of the world. Then we found out he stuck an eraser in his ear and it got so deep that I thought we where going to have to go to the MRI. Most moms would panic not me I laughed. Because at some point life just is unreal and you have to laugh because the alternative is crying.
Saturday we spent most of the day laying around and hanging out. Then my girl friends took me out to get out and have a good time. I was so grateful for them to get me out and about. Jake got to go with a friend of mine to Feed my starving children. Unfortunately, Ellie was not up to it so she just laid low on Saturday.
Sunday we got to go to the Movies and that pretty much wiped Ellie out for the rest of the day. We had an amazing visit from three awesome guys who started the Weish4ever foundation who awarded our family with $5,000 with two stipulations. One they got to meet us and second that we do something fun with it. Its so nice to get permission to spend something on doing something fun to forget about the bills and the stress of life. Now Dave and I have allot of thinking to do on what to do with it. Dave has a hard time spending any money especially with all the bills coming in. I always say if being Amish with no electricity or running water was an option he would jump on it. Good think he is married to me and I draw the line at no power and running water.
Monday I had my 6 hour MS Medication transfusion and it has knocked me on my but. Tonight is the first time I actually got out of bed. I am so blessed to have an amazing support system that helps take care of doctor appointments etc. for Ellie and Jake while I’m knocked off my feet. Today was a huge day we got Ellie into School for her Studio Art Class. She slept late this morning woke up went to school and came home back to bed she went. Poor thing has no energy; it breaks my heart. I contacted doctors yesterday because she has also been vomiting. She is on a medication that this could be a side affect but also at the same time this could be an issue with her tumor. We received a phone call tonight that tomorrows big appointment has been extended and they added a Rapid MRI of the Ventricles. I am super nervous and praying that nothing is majorly wrong that this is just a simple side affect of the medication she is on. I believe if there is a blockage they would have to go in and put a shunt in and that’s the last thing we want is more surgery. Tomorrow is the day we get word if we can go on Vacation or not. My stomach as been turning for the past few weeks waiting for the final word. We will also find out the treatment plan and where we go from here. This is a huge day and it can’t come fast enough.
I wanted to take a moment and thank all the Facebook Elliestrong supporters with your photos of bracelets. It is by far the coolest thing and it reminds us daily to stay strong. Unbelievable that Brett Favre, the news anchors on NBC, Elevator man, construction workers, Firefighters, police officers, us Marshalls are all wearing them. Its so exciting to see how far Ellie’s word has spread. Thank you for your continued support. Our road is just beginning and its going to be a long one and we need all the continued prayers and support we can get.
There are several Elliestrong events coming up. Please comeout and support the events.
Wednesday March 5th two seatings 5:30pm and 7:00pm
Brave Laughter and Song put on by Allegro Dance and Music Company.
$20 Tickets for Pizza Buffet, Music, and improve entertainment by Allegro Academy Students
(I think Ellie is going to be part of this) She is going to rehearsals tonight
At Gelsosomo’s pizza 206 Main St., Lemont, IL
Get your Tickets by calling 1- 877-ULearn3 All proceeds benefit Ellie Cuiching
*See Flyer below
Saturday, March 9thSt. Patrick’s Day Parade in Lemont
Ellie will be the Princess for the Parade
Come out and cheer her on
Sunday, March 10thSaint Baldrick’s at Frankfort Black Belt Academy
They will have raffle baskets and silent auction items that will benefit Ellie along with two other children battling childhood cancer. See flyer below
Wednesday, March 13thNex Mex 319 Front St., Lemont
15% of there sales for the day will help Ellie and another family battling childhood cancer
Also #Elliestrong T-shirts will be on sale that evening at Nex Mex
Friday, March 15thLemont High School Talent Competition
Ellie will be performing in this event
50% of admission costs will benefit Ellie
Tickets will be on sale during lunches at the High School and at the door
See flyer below
April 5th& 6that Naperville Yard
Taekwondo Tournament Chi-town Showdown is now an Elliestrong event
All admission will benefit Ellie, proceeds from #Elliestrong Tournament t-shirt sales, and someone will be selling bracelets at the event on the 6th.
If I missed any March events please let me know.
Bracelet sales around Chicagoland or you can go to www.elliestrongnationwide.comand order yours
•Ats-a-Nice Pizza has bracelets now in Romeoville
Pawlak Properties (Keller Williams) will donate $500 to every house sold or bought in 2019 if you mention #EllieStrong
Call (630) 796-0199
That’s Sew Layla headbands – at Higher Ground Coffee in Lemont –
223 Main Street, Lemont, IL
you can pickup your green that’s so Layla headband and $2 will be donated to Ellie. This young lady started this headband company and is giving back. Photos below
Eich’s Downtown Lemont
Is selling #EllieStrong Tshirts and $8 a shirt will be donated to Ellie. Follow link below to order
Elliestrong Stickers are for sale at some local Lemont Businesses.
Digs on Canal
Please let me know if I am missing anything
A mother with a battle ahead of her.