"On Call" Just like the doctors!
So this week has been some what of a roller coaster when it comes to Ellie’s Meds. She was supposed to go downtown on Wednesday to begin her study. As I was walking out the door on Tuesday night for football and cheer her Nurse for her case called. She informed me they were in the middle of Brain Tumor Board and she and Dr. Stew stepped out because there was a problem getting the medication from the study contortion. Needless to say they did not have the medication in hand and all the tests she did were only good for a week. Luckily when doctor stew walked out of the meeting he contacted the study contortion and advocated for Ellie so she would not have to retake any tests. With that being said I received a phone call Wednesday letting me know that a carrier would be delivering the medication to the hospital at 11:30am on Friday and we had to be at the hospital. Tonight around 5:30pm Doctor Stew Goldman called me to let me know that they were not sure if it was going to arrive tomorrow and basically I will be on call. As soon as Doctor stew calls me I will have to head to the hospital tomorrow unless it doesn’t make it then we will have to regroup the plan.
Ugh now here is the scary part as a mom. Ellie's tumor has not stopped growing and everyday chemo gets put off the tumor enlarges. So today I felt like she was absent minded. Is this because she was at school early this morning and did not get a goodnight sleep or is it the tumor. God Only Knows. Please pray that we get a call tomorrow and she can begin Chemotherapy. I have been getting texts and phone calls asking what the status is so here you go we are “on call” waiting just like a doctor. We did set up Ellie’s Locker today for 7th Grade. That’s crazy she is in 7th grade.