So today was a long day. Dave volunteered to help out this morning setting up for the Girl Scout Spaghetti Dinner, and then we attempted to clean our Garage out. It needed it so bad. Our Garage was one that I would get embarrassed every time the garage door would open. Don’t get me wrong we still have a long way to go but I feel like we have accomplished allot. While we cleaned out the Garage Ellie and Jake played on the bikes. I was really proud of Ellie, even though she did not last long she did try.
I am even more proud of her because we have had now four successful days of Ellie being Ellie. She has been sweet, kind, and polite. Just like it was before her surgeries. On the flip side since Ellie has been being so well behaved Jake has decided to become a difficult child again. Sometimes I feel so bad for him because he knows he is being bad and he says sorry but he repeats himself. He has just had a couple of bad days, I’m sure it will be better soon. It is really hard to get mad at him though.
For Example today I came in from the Garage and went up to Jakes room just to check in. I said “hey Jake how are you doing?” Jake then responds with “Mommy, I’m so sorry, Mommy, I’m so sorry” Then he proceeds to tell on himself that he stole some candy and hide it in his bedroom. How stinking cute is that he did something wrong and then told on himself. How can you get mad at that? I just smiled and told him I was proud of him for telling me. Then I proceeded to tell him that we are not allowed candy in our room but if he would like a piece of candy to please ask and I would be more than happy to get him one in the kitchen. I just hope he is as open and honest as he gets older. With my luck, that’s not happening. But I guess I will enjoy the honesty now while I still get it.
On the more disappointing note. None of Dave’s (my husband) medications are working for his asthma. So the Allergist/Asthma specialists are now putting him on a specialty drug because they have tried everything else under the sun. The disappointing part is that the company called me to inform me that we have to cover 30% of the medication. I thought wow that’s great that it’s mostly covered. Well the 30% is $400.00. That’s right its is $400.00 a month our cost. I explained to the Doctor’s office that this is not possible with Ellie and her medical bills. So they are working out some different solutions for us. Dave’s medications that he already takes cost around $200.00 a month. Can I just get a breather from medical problems please! I wish to go one day without having to go to the doctor, call a doctor’s office, call a medical bill, or call insurance. Just a one day break would be nice. Well besides Sundays ;o).
Oh well life goes on doesn’t it? Tomorrow morning is the MS Walk. I will be thinking about it throughout the day. This is the first year I have not put a team together and done the walk since I was diagnosed. I’m sad about it but I have bigger fish to fry these days. I can live with MS; Ellie cannot live with a brain tumor. Hopefully by next year around this time I can have a little breather and we can go the MS walk. Although we are not going to the MS Walk we have a busy day ahead of us. So for now I wish you a peaceful night. Hugs and Prayers for my sweet Ellie.
A mother with a battle ahead of her.