So we met with Ellie’s Radiation Oncologist on Friday at the Proton Beam center. The plan is for Ellie to have 30 – 33 treatments for 6 consecutive weeks Monday through Friday. As of now the plan is to start radiation once we get back from Vacation. But we will go in within the next few weeks and get Neuro Phycology testing done hopefully. And then they need to fit her for a mask that she will wear during her radiation. Ellie is holding an example in the photo. I tried to make light of it and told her she can use it as a Halloween costume. She didn’t find it too funny but I do find myself pretty funny at least. We will have an MRI and if the tumor shows growth our vacation will be cancelled and we will begin immediately. We are still waiting for Ellie to heal a little from surgery and also waiting on the molecular testing before the treatment plan is official. They are not sure if Ellie will be treated with chemotherapy at same time as radiation or after radiation until that testing comes back. So for now I need the world to pray that her tumor does not grow within the next few weeks because Ellie really needs this vacation and so do we.
So Saturday was a casual neon dance at Ellie’s High School called “Morp” (prom backwards) and she was really disappointed she couldn’t go. One of her friends along with a few other girls put on a Mini “Morp” Dance on for Ellie Friday Night. Ellie was so tired from the long day at the Doctors and a little depressed, last minute said she didn’t want to go. I didn’t give her an option and sure enough she had a blast. She came home laughing and smiling from ear to ear. She is one lucky girl to have some amazing friends. This group of friends made her a scrapbook and told her every time they get together they are going to add photos. It makes me so happy knowing Ellie has some amazing friends along with an incredible support system in place.
Also on Friday Night I went with Jake to the Wizards fundraiser at there school. We had a great time the PTO gave Jake and I tickets right by the court. Jake really wanted one of his cousin to sit with him so I sat with my other niece, nephews, and sister. It was really difficult being out in public but everyone was so awesome and they just gave me hugs and wanted to say hi when I walked in. It was a fun night but I was exhausted and to be honest I wanted to sneak out before the end so Jake and I left a little early. Thank you so much to School 113a Foundation and PTO for arranging this event it was nice and it gave me some much needed comic relief.
Saturday Morning my Dad and Mary Kay came to visit with us. As my Dad put it “We brought the whole damn Dunkin Donut Shop with us” My dad lights up a room every time I see him. He just makes me smile and laugh no matter what the situation. While they where visiting we got word that my Grandma had a stroke in the hospital. Needless to say we all jumped in cars and went out to Indiana to go see her. When we left the hospital at 8:30pm tonight she really had made strides. She is constantly improving but she has a long road ahead of her. They are monitoring her in the ICU and we are hoping that she just continues on getting better.
I am drained and cannot tell you how excited I am about everyone going green in Lemont and all over the country. Including the Harlem Wizers that wore the bracelets. The girls at the game with the green signs. Amazing, just amazing Thank you. I am going to try and add as many photos as I can from Facebook page EllieStrong As far as twitter and Instagram I am still learning. I wanted to share what I shared on the Facebook page for those that are not on Facebook.
A mother with a battle ahead of her.